We chat to Kyra Stevens, a 15-year-old living with Type 1 diabetes, who saved her athletics coach, Shafiek Murphy’s (48) life, with quick-thinking and action when he went into a diabetic coma.

Kyra Stevens (15) lives in Kenilworth, Cape Town with her parents, Marco and Kim, and her brother. She is a Grade 9 pupil at Sans Souci Girls High School.

Kyra to the rescue

On 11 July 2019, Shafiek Murphy, a Type 1 diabetes patient, was found on the floor, in the community room, at the school. He had recently returned from the Winter Games, in Durban, where he coached the Western Cape girls U/15 rugby team. Unfortunately, he became ill while on tour.

The principal, Ruschda O’Shea, and two other teachers were called. Kyra sprang to their minds as she has diabetes as well, and had informed the school. When Kyra arrived, she tested Shafiek’s blood glucose level which was extremely high. She then administered insulin into his abdomen, before another teacher rushed him to hospital.

At the hospital, Shafiek’s blood glucose level was 36 which is near fatal. After X-rays, Shafiek was diagnosed with a chest infection and tonsillitis. The doctor explained that if Kyra had administered the insulin five or 10 minutes later, Shafiek would have died.

One-on-one with Kyra

Tell us in your own words what happened on that day when you saved your coach’s life.

I was in a class lesson. Then very randomly my maths teacher approached me in the class and asked for my glucometer. I asked him why. He responded by saying that someone went into a diabetic coma. I gave him my FreeStyle Optium Neo glucometer and told him that he has to warm the fingers before checking the glucose level.

No later than five minutes, I was called via the intercom to come to the community room. I ran there knowing that is was Coach Murphy as he was the only other person in the school who has diabetes. When I got there, they told me I must test his glucose levels. So, I got everything ready.

But when I pricked a finger on Coach Murphy’s left hand, no blood came out as his hands were already cold. I told one of the teachers to warm up his right hand warm so I could get blood.

Eventually I got blood and his glucose level was really was high. Immediately, I asked where his emergency kit and insulin were. I found his insulin in his bag and injected 25 units in his abdomen.

After that Coach Murphy was taken to the hospital. The very next day, he phoned me to say the doctor said if it wasn’t for me, he would have died. So, I saved his life.

Are you proud of yourself?

I am proud. But, at the moment, I have no words to explain how. Everybody is asking me how do you feel and how this, and how that and I’m like, “Ja!”

Do you and Coach Murphy have a good relationship?

Coach Murphy started working as the Head of Sports at our school at the beginning of the year. So, yes we have a relationship and we had spoken to each other about diabetes. But since this incident, we have become closer. I have been checking up on his every day, sending him messages asking if he is okay.

When were you diagnosed with diabetes?

Two years ago in July 2017. I am currently using an insulin pen and administrate Humalog, Protaphane and Actrapid.

Has it been easy to be open about your diabetes at school?

Yes it has. I have told most of my friends and all my teachers know. At  the beginning of the year, my parents had a meeting with all my teachers and the Grade Head. The first year I was diagnosed, my parents also held a meeting so all my teachers knew.

Have you ever experienced bad lows or highs?

Yes I have, but I have never gone into a diabetic coma.

Have you fully accepted your diabetes?

Yes and no. More a no, because I don’t have a grasp on it yet. It’s not easy for me because I have never had to checked my glucose before I ate. Now I do.

Normally, I was like, ‘Okay food is ready.’ But now, I see my brother eating and my mom and dad eating and I’m the only one who has to check my glucose levels before I can eat. Sometimes I’m really hungry so I don’t check and then don’t inject at all.

Has this incident showed that good management of glucose levels is important?

Absolutely! Now more than before it’s encouraged all of us (my family) to be more aware of what could happen if we don’t control my numbers.

One-on-one with Kim Stevens, Kyra’s mom

How proud are you of your daughter?

When Kyra came home and told us about the incident, she played it off as though it was not a big deal. It was only until I heard from Coach Murphy that I completely understood the gravity of what took place. It is a super proud moment, for myself and my husband, to know that Kyra was calm under pressure and she managed to do what she did. I don’t know if I would have been able to do it.

How does it make you feel to see your daughter go through the journey of accepting her diabetes?

I think Kyra going through puberty has a lot to do with being able to accept being diabetic. Plus, she was diagnosed with ADHD in Grade 3. That was hard for us to get through and work through.

Kyra attended Timour Hall Primary School and every single year of primary school was hard for Kyra. Hard to make friends, hard to keep friends, hard to get invited to parties, hard to please teachers. She was always in trouble.

But then she started Grade 7 and she absolutely enjoyed it and there was such a change. Once we got the ADHD under control, she was then diagnosed with diabetes. This news has thrown our whole family into a total spin and it has been hard for her to accept.

But due to the fact that she used her knowledge to save someone’s life is tremendous. This shows us that even though she acts like she’s not interested in the management of her diabetes, she has taken note of what to do. So, it gives us, as parents, a little more confidence to be able to trust her if something should go wrong.

Is Kyra’s medication covered by medical aid or public hospitals?

We started off at The Red Cross War Memorial Children’s Hospital at the Diabetic Clinic there. It is a fantastic hospital, with brilliant doctors. Everyone was super nice and the education we got there was top class.

Since the beginning of this year, we were transferred to the outpatients at the Groote Schuur Hospital as part of the adolescents diabetic clinic. She still gets to see the same doctors because the doctors work at both hospitals. We collect her medication from the public hospital, Groote Schuur Hospital.

What are the financial implications of having a child with diabetes?

I think I speak for everyone when it comes to eating healthy. It is just so expensive. So, we try to encourage Kyra to inject. I made a deal with her that she can eat what she feels like, but she must inject. There was a period, for about six months, where she wasn’t injecting at all. She wasn’t even checking her glucose levels. Because of this, we considered trying a continuous glucose monitor but it was just expensive. We cannot even think about getting her one.

I was thinking of doing fundraisers to raise funds but that money will only last so long. What happens after that? So, the financial implications are quite severe. My husband and I run a small business, and have to pay salaries and adding a diagnosis of diabetes to the mix has just thrown us in the deep end. We still just trying to swim. But, we will do what we have to to ensure Kyra’s health is good.

MEET OUR EDITOR

Laurelle Williams is the Editor at Word for Word Media. She graduated from AFDA with a Bachelor of Arts Honours degree in Live Performance. She has a love for storytelling and sharing emotions through the power of words. Her aim is to educate, encourage and most of all show there is always hope. Feel free to email Laurelle on editor@diabetesfocus.co.za

Type 1 diabetes patient, Justin Groenewald, tells us about his dream of doing the unthinkable – to be the first person with diabetes to complete Roof of Africa Enduro 2020.

Justin Groenewald (38) lives in Bellville, Cape Town. He is divorced and has a daughter.

Ever since Justin was young, he refused to sit on the sidelines. He is a go-getter that will do anything to achieve what he wants. Even when he was diagnosed with Type 1 diabetes at the age of 10, his attitude stayed the same. He continued competing in school sports and doing everything he wanted to do.

Though, he admits that he has not always been the best example when managing his blood glucose. “I didn’t follow diets ever. I smoked and managed my glucose via symptoms, not testing. If I felt terrible, only then would I test, inject or eat,” he explains.

This changed when he needed to get a motorsport license. “I needed a specialist to sign off a medical letter and that would only happen when my diabetes was under control,” he says. “Managing my diabetes well includes three steps: First – exercise is core, secondly – avoiding unnecessary food and snacks, and thirdly – laughing. There is no perfect diabetes patient, when things go wrong, just smile and fix it.

Six years ago a specialist signed off that Justin was medically fit to compete in endurance motorcycle racing. With that Justin has competed in many races, Roof of Africa bronze qualifier and Motorsport Cross Country events, to name a few. Though, further goals lie ahead.

He has had an on and off battle with smoking but is proud to say he has stopped smoking again this year. He adds, “It limits my performance. It stinks and I cannot live my dream whilst smoking. It had to go.”

So, what is his dream?

Justin tells us in his own words:

For 28 years, I have been a Type 1 diabetes patient. I have injected more than 31 000 times (now Apidra and Basaglar), tested my glucose level about 25 000 times (now Accu-Check instant), had approximately 3 400 hypoglycaemia events and 4 300 hyperglycaemia events.

Yet, my life has been filled to the brim with adventure and doing things that people said I could or should not do. There should be no reason for our condition to stop us from doing the unthinkable.

We, people living with diabetes, have lives filled with routine: testing glucose and injecting, limited diets and even getting into a habit of counting calories. Our bags are filled with glucometers, injections and low sugar meds. We freak out when we realise that we have lost or forgotten our diabetic paraphernalia on a trip to the shop, never mind a weekend away.

High expenses

We often incur unnecessary costs by purchasing emergency items and our daily expenses are slightly higher (additional vitamins), and due to higher likelihood of getting sick, we have additional medical costs. Medical aid (Discovery Coastal Saver) is essential for me but life insurance is just too expensive.

My medical aid covers most of the costs. The only issues I have encountered has been towards the end of the year when I need to pay for my glucometer strips. I test at least three times daily and this runs over their minimum prescribed benefit.

The other issue is that I used to receive disposable pens. However, the medical aid now only covers the cartridges and I have already broken two of the permanent pens. Luckily, a pharmacy replaced them without charge.

Constant worry

As people living with diabetes, we are uncertain how far or how long we can run, cycle, play hockey, rugby and surf before our glucose level drops.

We constantly live off the feedback from our lifestyles. We feel weak, angry, irritated, get the dreaded cold sweats, or pins and needles from hypos and hypers. Sometimes just getting up takes all our effort and sometimes we just don’t want to care anymore. We get tired of the constant worry of our diabetes being under control.

Stop and take a deep breath

It is at exactly this point that I say stop. Take a deep breath and understand that you are able. Understanding your body, looking after your glucose levels to the best of your ability means that you have very few limitations.

I have done many crazy things and didn’t manage my diabetes as best as I could. I have over a hundred scars on my body; broken both my wrists, one twice; broken my arm twice; ribs several times, at least three toes, fractured a vertebra and chopped part of my finger off.

I have spear dived and been with sharks, with blood in the water. At provincial hockey trials, I kept vomiting next to the field  after waking up in an ambulance from a hypo. I have taken on every challenge and I am still here in one piece. I admit this is not the wisest and safest way of doing the unthinkable.

Manage your diabetes properly

So, I realised that if I want to achieve all my dreams, I had to start with managing my glucose levels properly. I have changed my lifestyle as mentioned above. The next step in my journey cannot be taken lightly. I am about to do the unthinkable.

All the silly and crazy things I have done in the past was just me fighting against people saying I can’t. The next step will be done to prove to all my fellow people living with diabetes that I can and so can they.

What is doing the unthinkable?

A journey that will start with Roof of Africa Enduro 2020 (Silver Category). I will be the first person with diabetes to complete this race – a race considered one of the world’s hardest extreme motorcycle enduros.

The next steps will take place in 2021 and 2022. I aim to complete Red Bull Romaniacs and then the big one, The Dakar Rally. Each event will be used as an opportunity to drive diabetes awareness.

The question is why?

The answer is simple…It is for each parent of a child living with diabetes to realise that their children can. Their children can play rugby, hockey, run long distance, play chess, race mountain bikes and surf. Their children can compete in any event with their parents’ support.

It is for every diabetic child to realise that they can do the unthinkable. The only person to stop them or slow them down is themselves. Their future is not limited by their condition.

The future might require a bag with medicine. It might require them to pay attention to what they eat and managing their glucose levels. But there are diabetic athletes in SA that have ridden some of the hardest mountain bike races. There are diabetic runners, swimmers and none of them allowed their condition to slow them down.

Preparation

Competing in any endurance event takes months of training. I keep fit by doing Muay Thai three times a week and then at least one day, increasing up to three days’, seat time (on bike). Anything from three hours to nine hours on the seat per session.

The Roof of Africa consist of three days riding. So, your body needs to be used to the pain and going past its limits. I travel with a bag on my back; it contains three litres of water, two litres of Powerade/Energade, two sandwiches, hardboiled sweets and three to five protein bars, my glucometer and my insulin pen. My bag easily weighs an additional 3 kg’s more than the average riders.

Justin already has a sponsor: WaldCon. His agent will enter him into the race once entries open early next year. We wish Justin all the best and hope he achieves the unthinkable. Follow his journey on www.diabetics-do-it.com

MEET OUR EDITOR

Laurelle Williams is the Editor at Word for Word Media. She graduated from AFDA with a Bachelor of Arts Honours degree in Live Performance. She has a love for storytelling and sharing emotions through the power of words. Her aim is to educate, encourage and most of all show there is always hope. Feel free to email Laurelle on editor@diabetesfocus.co.za

Florence Schrikker, aka Flori, tells us how living with Type 2 diabetes and an amputation never stopped her living her life to the fullest. She has since co-written two cookbooks, Kook sam Kaaps and Soettand, and co-hosted a cooking show, Flori en Koelsoem se Kosse.

Florence Schrikker (66), better known as Flori, lives in Bonteheuwel, Cape Town with her husband. They have four adult children and 10 grandchildren.

Diagnosed 36 years ago

Florence was diagnosed with Type 2 diabetes over 36 years ago. Though she learnt to live with her condition by keeping her faith and remaining positive no matter what, even when she was faced with the decision to amputate her left leg. She explains, “I try to stay positive with the help of God. His grace is sufficient for me; if it wasn’t for God, I don’t know where I would have been.”

She explains her symptoms, before she was diagnosed, included an uncomfortable dryness of the mouth as well as frequent visits to the restroom, and dry itchy eyes. “I was diagnosed by my family doctor, who put me on NovoMix (insulin) and Metformin tablets.”

Complications

On 2 February 2011, the grandmother had to have her leg amputated above the knee due to a diabetic ulcer not healing and gangrene setting in. Diabetic ulcers are caused from uncontrolled blood glucose levels.

“My doctor tried his best to avoid the amputation. He battled for two years to get the ulcer to heal. I wore various shoes and many gadgets in attempts to save my foot but eventually we had no other option but to amputate. But, thankfully, the ulcer on the right foot healed,” the 66-year-old explains.

As can be expected, the idea of losing half a leg was not only hard for her to handle psychologically, but it took a strain on her financially. “I needed to get around and somehow regain my independence. So, I eventually invested in getting myself a battery-operated bike. Although, I was on a medical aid, it didn’t cover all the costs. But, fortunately for me, I had received a pay-out due to being medically boarded from work (a bank) and I used that money to purchase my bike.”

“I chose the battery-operated bike because it was by far the most convenient option. It gave me a sense of being independent as it allowed me to move around by myself.”

It took Florence six months, after her amputation, to learn how to walk again. On the long and bumpy road to her new normal, she never gave up.

She regards her life as an exciting journey with many adventures, which includes her famous cookbooks, Kook sam Kaaps and Soettand, and the television programme, Flori en Koelsoem se Kosse.

Talking money and medical costs

Being financially prepared by such an event can prove to be so hard for many people, especially the elderly like Florence. She urges those who are still considered healthy to begin saving for rainy days. “Having savings for rainy days is vital because like myself I am living off the government pension. Luckily, my medical aid is covered by previous employer. At times, I have to ask for financial help from my family.”

Flori goes on to say, “Having medical aid has assisted me a lot, and although I have to contribute to some of my medical costs, it’s not the same as having to pay for everything. Being a pensioner, it’s not easy covering all the costs that come with being diabetic as well as an amputee, and having extra financial help is always something positive.”

For those who aren’t fortunate enough to afford medical aid, she gives the advice that prevention is better than cure. “I encourage everyone, whether you have diabetes or not, to equip yourselves with knowledge of the basics of healthy living, by watching your diet and eating as healthy as possible from the get go. If I had known what I know now, I would have been more careful.”

Try to live a healthy lifestyle

Although the self-proclaimed sweet lover admits that there is nothing wrong with  spoiling yourself with sweet treats every now and then, she encourage to balance everything out.

She also adds that due to healthy organic foods are not always cheap and affordable, making it nearly impossible to maintain a healthy diet, she advocates people to cultivate their own vegetable farms, and most of all, exercise every day.

She concludes, “I know some people don’t know how to go on after something like an amputation but I want them to see people like me living, to show them that they shouldn’t give up on life. Never let your condition determine your position.”

MEET OUR JOURNALIST

Londiwe Nkonyane is a second-year journalism student at Rosebank College. Her hobbies include reading and writing short stories and she wishes to own her own publication company in the near future.