I have diabetes and I am a theatre scrub nurse

Nokusa Matlhabe (50) is a divorcee. She lives in Lakeside, Vereeniging, Gauteng with her 18-year-old son. She has Type 2 diabetes.


Diagnosed by gynaecologist

At the age of 32, Nokusa was initially diagnosed by her gynaecologist after giving birth to her second child. Her second daughter was considered a large baby, weighing 4,5kg. This fact, known as macrosomia, made Nokusa’s gynae think she had diabetes.

Being in complete denial, Nokusa ignored what her gynae told her and focused on her new born. Sadly, her second child died three months later due to a heart problem. The brave mother grieved and dealt with the trauma of losing a child, but was overjoyed when she fell pregnant with her third child shortly afterwards. She gave birth to a healthy baby boy, who is currently doing his matric year.

Life carried on and because the mother was asymptomatic she never once gave her ‘so-called diagnosis’ a second thought. However, eleven years later in 2010, the mother paid the price for this choice. She collapsed at home due to diabetic ketoacidosis. Her eldest daughter, who was 20 years old at that time, rushed her to hospital. Nokusa was admitted into high care. She went partially blind and suffered all the complications of uncontrolled diabetes. The doctor at the hospital introduced her to sliding scale insulin treatment. It was time for Nokusa to finally admit and accept that she had Type 2 diabetes.

It was a slow journey to recovery but with the support of her children and her positive attitude she succeeded in her acceptance and self-care. In no time, she was back living her life as normal – only this time taking medication and changing her diet for health purposes.

Control

The theatre scrub nurse is currently on insulin and metformin, and has her diabetes under good control. She will inject before she leaves for work to avoid experiencing a low while driving to work. She tries to eat before her theatre list starts, and loves her Future Life products.

She does, however, find it difficult to maintain her eating times at work (she needs to eats at specific times due to being insulin dependent). This is because she is scrubbed up and can’t find a colleague to relieve her, and can’t leave her duties unattended.

When this happens, she will ask a colleague to fetch her Future Life Smart Drink or Future Life Cereal from her bag. She will have a quick sip or mouthful in order to keep her going. She also keeps sweets or bananas in her bag in case of these situations.

Stress

Even though, her diabetes in under control, the stress of either delaying theatre lists or being late for work due to her check-up days is an issue she struggles with. “Working in the health sector, one would expect colleagues to understand such conditions but it’s not like that. Instead, they think you’re faking it,” Nokusa explains.

Ignoring such behaviour and comments has allowed Nokusa to persevere through her career. “I know I am not faking it and know the importance of eating every three hours, so I just ignore them. Plus, the doctors, like the surgeons, and anesthetists etc. who I work with are incredible. They are understanding and so supportive.”

Hospital employee wellness programmes

Even though the nurse works at a hospital, she says she has never been invited or seen ‘diabetes awareness programmes’ at work. “If there was, I would love to go and get more support from my workplace,” Nokusa says.

Exercise

Nokusa honestly admits she doesn’t exercise as she should. “I have to walk a lot at work and always choose the stairs rather than taking the lift. But, even though, I could walk to the shop from my house, I choose to drive in my car. We get lazy.”

MEET OUR EDITOR - Laurelle Williams

Laurelle Williams is the Editor at Word for Word Media. She graduated from AFDA with a Bachelor of Arts Honours degree in Live Performance. She has a love for storytelling and sharing emotions through the power of words. Her aim is to educate, encourage and most of all show there is always hope. Feel free to email Laurelle on [email protected]

I have diabetes and I’m a senior fraud investigator


Lauren Grout (30) lives in Pretoria, Gauteng, and is a senior fraud investigator (admitted attorney) at a bank. She has Type 1 diabetes.


 Family history

Both Lauren’s gran and aunt had Type 1 diabetes, however, that never prepared Lauren for the shock of being diagnosed in her matric year. She was fit, healthy, active and was on a well-maintained diet, rarely eating sugary or processed foods nor drank soft drinks. She admits that she was not aware of how one got Type 1 diabetes. “I was hugely hurt, unsure of myself, upset and angry…all the ‘why me?’ questions flooded me. And, being a young woman – all sorts of insecurities followed,” Lauren explains.

Another surprise was all the implications and what treatment would entail: all the snacks required, injections, testing glucose levels, hypos (she had some bad ones), mood swings, diet restrictions and horrible highs.

Treatment

The 30-year-old currently still uses insulin pens (Novorapid and Lantus). She has considered a pump; her GP believes she’ll be a good candidate as she is sensitive to insulin and has lows quite often. The fact that the pump is attached to the body the whole time and must be ‘hidden/kept’ somewhere is somewhat of a deterrent for Lauren. “I also am wary of the location sights – a friend showed me what her abdomen looked like due to the pump,” she adds. But she does see herself eventually making the change in the future as one can control their sugar levels to a greater level with a pump.

Fears

When Lauren began her career as an attorney, she would often fear that she would have a hypo in court and would have to request the magistrate for an adjournment. She was aware that in such instances, it would be understandable and granted but it was still a constant worry. She adds,I have had moments of doubt; however, it has not stopped me from pursing my dreams or studying further, and I do not believe that it will in the future. But, there are careers that would not really be suitable for a diabetic patient, such as a deep-sea diver, or miner etc. This is due to the risk involved should the diabetic suffer a hypo.

Diabetes in the corporate world

The bank that Lauren works for has been extremely supportive and understanding. She has been open about it, as she attends numerous meetings, which are long in duration, and may need to excuse herself to eat a snack. She explains, “It helps for one’s colleagues to understand your needs etc. In addition, it is a great opportunity to create a greater awareness for diabetes in general.” 

Corporate wellness programme

A free corporate wellness programme is offered through her employer. However, it is managed externally. It caters for all types of concerns, such as physical and mental wellness. Counselling sessions are also offered and remain confidential. 

Eating at work

I believe in breakfast! So, if it’s a rushed day and I leave early, I will usually have yoghurt and All-Bran, which I keep at the office. Alternatively, I will have a boiled egg or scrambled egg and Provitas/melba toast (as the canteen does not have low-GI bread). Our canteen offers sugar-free smoothies and there is a café with banting options too,” Lauren says.

“Around 10am, I have a snack, either a fruit (apple, plum, pear), biltong, a small handful of almonds or four Provitas with cheese. This depends on whether my sugar level is dropping (then I will have the fruit/crackers option) or if I just need a snack for sustenance (then the protein options).”

“For lunch, I usually take a chicken salad, or I’ll buy a grilled chicken wrap; basil pesto pasta; grilled chicken/beef and veggies or a salad. I also keep a snack in case I need something around 4pm (as sometimes I only get home around 7pm).

Canteen food options

The canteen at Lauren’s office does offer a few healthy options but she feels this could be expanded as the ‘healthy meals get a bit boring after a time’. “Like most large commercial canteens, most of the foods either have added sugar, or have a high fat content. All the things like stir-fry’s, sauces, pumpkin etc. have added sugar, and there is quite a lot of crumbed foods as well as ‘fast food’ like fries, burgers and tramezzinis,” Lauren explains.

“I avoid refined white flour, wheat flour/gluten pasta, high fat foods as well as overly rich foods. However, we have various salad options that one can mix up, as well as grilled chicken/beef wraps, smoothies, veggies, grilled chicken breast, soups, meat options, samp, rice etc. Yet, this depends on the menu for the day. Fortunately, the bank has three other cafés on its premises, which offer healthy and banting options. A bit expensive, but worthwhile for the change at times.”

Misconception

Lauren advises other diabetic patients to tell their employers about their condition. “Being a woman and saying ‘no’ to sugar, many people assume that it is because I’m on a diet to lose weight. I am relatively healthy and slim and this would attract negative assumptions or comments from people, for e.g. “Why won’t you have any cake? Are you on a diet or something? You don’t need to be on a diet!”

investigator diabetes

Lauren hiking in Drakensburg with her boyfriend, Georgios Sparis.

She also adds that she often goes on corporate team building, and thus dietary requirements need to be catered for. “But, being open about your condition is mostly important for people to know, if you have a hypo. People need to know what actions and steps to take, as well as who to contact in such circumstances,” she clarifies.

Working out

Exercising is dependent on Lauren’s workload. She tries to exercise at least 2 – 3 times a week for 45 minutes, consisting of a minimum of 20 minutes’ cardio (running usually, or spinning) and weights thereafter.

Support 

Though it has been a challenging journey thus far for the senior fraud investigator, it has become easier to handle. Lauren believes the most important thing is to have a strong foundation of support. “I have a very loving and understanding family, who immediately jumped on board, and we accepted this challenge together. It was not ‘my diet’ and lifestyle that changed, but all of ours, as diabetes does not only affect you, but all those around you. Even within a work environment. Thus, it is important for one to be open with one’s colleagues and staff, and vice versa for a company to be understanding and accommodating.”

MEET OUR EDITOR - Laurelle Williams

Laurelle Williams is the Editor at Word for Word Media. She graduated from AFDA with a Bachelor of Arts Honours degree in Live Performance. She has a love for storytelling and sharing emotions through the power of words. Her aim is to educate, encourage and most of all show there is always hope. Feel free to email Laurelle on [email protected]

I have diabetes and I’m a teacher


Shelly Schutte (26) currently lives in Krabi, Thailand where she teaches English and Science. She has Type 1 diabetes.


Diagnosed at an early age

At the age of 10, on 19 February 2001, Shelly was diagnosed with Type 1 diabetes. She feels blessed that she was at an age where she could take responsibility for her own injections and self-care in a relatively short amount of time. However, developing the maturity to cope with diabetes in her preteen and teen years that followed was sometimes a challenge. But meeting other teens with diabetes helped. Every year, she celebrates her ‘diaversary’ with a slice of cake!

Diabetes youth camps

Two weeks after the 10-year-old was diagnosed, she attended her first diabetes youth camp in Cape Town. It was here that she realised she would be okay as there were other children out there like her.

“When I am on diabetic camp, I truly feel that I am with ‘my people’- the only people in the world who really share in this thing that is a huge part of my daily life. Being in a room full of others who all must test and inject before eating is a joy and a blessing, that is beyond words. I would recommend attending one, wholeheartedly. At the camps, children learn all about the different legs of the ‘tripod’ of managing diabetes: exercise, food and medication. But most importantly, they get to meet older and younger people with Type 1 diabetes and make friends,” Shelly says.

The 26-year-old doesn’t think the benefits of camp ends at childhood either. She has a dream of establishing a variety of diabetes programmes, including adult diabetes retreats and a ‘big sister/big brother’ programme that couples newly diagnosed diabetics with an older mentor.

Conquering self-doubt

There were times that Shelly believed her diabetes would hold her back, not only in her career but in life, saying: “I think every Type 1 diabetic has at some point. Managing diabetes is hard work: a full-time job on top of your full-time job! It can be difficult to prioritise both when one is being particularly needy or difficult. But there is absolutely no reason for diabetes to hold anyone back. I have pursued almost every opportunity I have wanted to pursue, and I know that when I feel diabetes is holding me back, the problem is psychological, rarely physical. There are so many incredible tools available today to manage diabetes and connect diabetics globally. Being a diabetic means having to put in some extra effort to have experiences and opportunities many consider normal. But it is not beyond reach.”

Openness as a teacher

The high school teacher tests her blood sugar every break time. She eats (and injects) on a regimented schedule and is lucky enough to receive a 45-minute lunch break, with plenty of delicious and healthy options.

She has been as open about her condition as she can, explaining, “From early on, I sent around a ‘protocol’ to describe what to do if I am ever severely low at work or if I am hospitalised and unconscious, such as numbers to call and information to give the doctors etc. I also provided my colleagues with the Youth with Diabetes (YWD) Teacher Handbook and offered to provide more in-depth training for anyone who was interested.”

“I joke about my diabetes a lot and if I am teaching a topic related to endocrinology, I will put a chart up on the wall and we track my blood sugar for the week. This not only teaches students the reality of how blood glucose levels can vary (although to a lesser extent in non-diabetics) but also helps them to understand better what I mean when I need to take 5 minutes out because of a ‘low’. By bringing my diabetes into the classroom, I try to create an environment where students feel free to ask me questions at any point.”

Not only is Shelly honest with her students but with their parents as well. Recently, on World Diabetes Day, Shelly provided parents with the YWD Teacher’s Handbook and gave a short overview of her life story. This was posted to school social media and she has had several positive conversations with parents since.

Travelling and diabetes

This brave young woman has learned so much about her diabetes while travelling, saying, “There are a whole new range of challenges to navigate. Falling ill is a major one of these. My friends and colleagues are wonderful but they don’t fully understand how scary even a simple illness can be. Fears of ketoacidosis, diabetic complications, having a low in my sleep…all are massively exacerbated when I am feeling unwell. The many fears that are a part of having diabetes are quite easily kept at bay most days. But when you are feeling down, diabetes can kick you down quite easily. I have had to learn that when I am feeling like this, the only person who can really take charge and pick myself up again is me. I’ve learned that things often seem worse than they are and even if you’re having a bad week, month or year, you can start again right now!

Logging things religiously has been one of my biggest helpers – from exercise and food to blood glucose…just the simple act of writing these things down helps me feel more in control. This assists me in making more positive decisions regarding my own health. I’ve also had to start being less blasé about seemingly small issues. I cut my hand doing a tug of war just before leaving for a trip to Bali recently. In the hectic days of traveling that followed, I didn’t care for it carefully enough and it got infected. That cost me an expensive trip to a local international clinic and it was a reminder that I always need to be extra careful.

But most of all, I feel like I’ve proven to myself that there’s very little diabetes will ever stop me from doing.

teacher diabetes

Keeping insulin safe

Shelly always travels with a portable cool pack and makes sure she stays in a hotel or hostel with a fridge, and puts her insulin into it straight away when she arrives. Short-acting pens are always in more than one bag. That way, if her bag is stolen, she’ll have short-acting insulin to get her by until she gets properly sorted out.

Obtaining medication overseas

“When I first moved over, I stayed on my South African medical aid and was granted a six month advance of test strips and insulin. After this, I was hopeful I could source my medication locally. I went to the local public hospital soon after I arrived, to make sure they had a file open on me with all my pertinent medical details. When I had two months of supplies left, I visited the hospital again to investigate if I could get my medication there. A friend has epilepsy and she is given her medication for free once a month, as per social security benefits of having a work permit in Thailand.”

“However, as we all know, diabetes is a complex condition that a lot of doctors know very little of. There is also a big language barrier to work around in Thailand. After six hours of queuing and going between floors, I was eventually given two Novomix pens. Now, aside from the fact that two insulins are not enough to last me, I, as a Type 1, cannot be on Novomix! I tried to explain this and eventually got given one Levemir and two Novorapid pens. This is still not enough to last me for long…and I was charged almost 2000 Thai Baht (about R700) for my ‘non-essential’ medical supplies.

This experience, coupled with the fact that small pharmacies are common in the area but majority of them do not sell insulin, I decided just to stick with my medical aid in SA. I return to the country every six months, see my doctor and get all medical tests done and then am given another six months of insulin,” Shelly explains.

The diabetic teacher knows this is not a long-term solution but hopes that in the next country she works in, she will have health insurance as part of her employment contract.

Read Shelly’s travel blog notalllwhowanderarelost.wordpress.com where she writes about her adventures and her diabetes.

MEET OUR EDITOR - Laurelle Williams

Laurelle Williams is the Editor at Word for Word Media. She graduated from AFDA with a Bachelor of Arts Honours degree in Live Performance. She has a love for storytelling and sharing emotions through the power of words. Her aim is to educate, encourage and most of all show there is always hope. Feel free to email Laurelle on [email protected]

I have diabetes and I am a pre-hospital emergency doctor


Alan Walters (73), a pre-hospital emergency doctor, lives in Noordhoek, Cape Town. He has Type 1 diabetes.


Written by Alan Walters

I currently work as a paramedic doctor; I help run a paramedic/ambulance unit in the Cape Peninsula to the south of the City of Cape Town. My duties involve assisting on the business side, as I am a part-owner, and responding to emergency calls. My emergency response vehicle is covered in colourful stripes, has flashing lights on the roof, and an extremely loud siren.

I am 73 years old, and feel healthy and fit. At times, I carry my 30kg Bergen, oxygen cylinders and cardiac monitor up several flights of stairs to treat a heart attack or other emergencies. I may also have to help remove an injured patient from a wrecked car.

I was 29 years old when I started to lose weight, became very thirsty and passed a lot of urine. Despite being a family doctor in the UK and have worked at a hospital diabetic unit, it took a while for the penny to drop.

Of course, I was upset and worried, not knowing what the future held. I was married with two children and the third was about to be born but I resolved that life must go on. I was surprised by how quickly I got used to the insulin injections. However, adjusting to a proper diet was not easy as I had a sweet tooth but you just do what you should do.

When I was in my forties, I became swamped at work, two of my general practice partners became ill and I ended up working 18 hours a day, for several months. Under a lot of stress, eating the wrong foods, ignoring my diabetic control – I paid the price. I had visual problems and bleeding at the back of the eyes that required a great deal of laser treatment. Fortunately, that did the trick and my vision returned to normal and is fine now. I still pass the eyesight test required to obtain a driving license.

In 2000, my wife and I moved to South Africa after falling in love with the country during a holiday visiting my daughter, who married a South African.

Currently, I go to the gym twice a week, have a personal trainer and can run a kilometre in seven minutes. I have done a fair amount of mountain walking and was a keen skier. I am a qualified scuba diver, although I am not sure if Type 1 diabetes patients can do that nowadays.

Living with diabetes means keeping a watchful eye on your blood sugar with regular finger prick tests and being aware that at times your blood sugar may drop, producing a hypoglycaemic reaction. It is important that you recognise the early symptoms, such as light-headedness, dizziness, and the feeling before the sweating and shaking start.

Fortunately, I have never lost the ability to detect when hypos have started. I always, but always, carry a small pack of sweets in my back pocket. I never ever go anywhere without them, ever since my first traumatic hypo – I had been skiing in Europe and returned to my hotel room. I changed and was going down for my evening meal when the light-headed feeling started. No worries, I thought. I will very soon be eating and didn’t bother eating my sweets and in fact left them in my room. I went down in the lift. The lift broke down on the ground floor and the doors would not open. My hypo got terribly worse – I started to pour with sweat with pronounced shaking. Luckily, the doors were forced open. A waiter saw the state I was in and asked, “What are you worried about? You are on the ground floor.”

“It’s not quite as simple as that,” I replied. My lesson was learnt.

So, what jobs have I done in my life whilst being a diabetic patient? I have been a general practitioner; a hospital doctor working at a surgical colorectal unit; a colonoscopist; an acupuncturist; a British Army doctor serving in Germany; a research scientist involved in experimental treatment for cancer of the colon; and now a paramedic doctor.

As a diabetic patient, you can become pretty much anything you want to be. Okay, so perhaps you won’t be allowed to fly jumbo jets, but never the less, most things. Dr Banting and Dr Best, who discovered insulin, have given us, diabetes patients, the chance to live a pretty good life. Seize it. I love my life and I love my job. No way do I intend to stop soon.

You are in charge of your diabetes. No one else. With efficient care, you too can have a great life!

I have diabetes and I’m a singer


Holly Wasserfall (21) lives in Westville, Durban, and is a house music singer. She has Type 1 diabetes.


Diagnosis

It was a diabetes awareness poster, on the sick bay’s wall at the boarding school Holly attended, that led to the discovery of her diabetes. “I had been feeling unwell for a long time. While I was lying in the sick bay, I read a poster that listed the symptoms of diabetes…this made me think that I could possibly have it,” Holly says.

Holly’s mother picked her up and Holly told her that she thinks she is diabetic. After a visit to their local GP, Holly was diagnosed with Type 2 diabetes, at the age of 9. However, it was only at the age of 11, that Holly was diagnosed correctly with Type 1 diabetes.

“Once I was diagnosed with Type 2 diabetes, I was put on Glucophage and a low-GI diet. I felt marginally better due to the reduced sugar and lower carbohydrate intake but I still felt somewhat unwell. I was suffering with extreme nausea and tiredness. When I went home for half-term in the first term of my grade 7 year, I was vomiting, incredibly sleepy and my vision was extremely blurry.

My mother tested my sugar but it was so high that she could not get a reading on the glucometer. She took me to the nearest doctor, who told her to rush me to the emergency room and called ahead. I was barely conscious when I was admitted to hospital. I was put under the care of a paediatric diabetologist and correctly diagnosed with Type 1 diabetes,” Holly explains.

Denial vs. acceptance

At first, Holly was in complete denial. “I didn’t want to be Type 1 and the idea that I would be injecting insulin for the rest of my life was something I struggled to accept. I kept begging my mom to take me home. I stayed in hospital for almost two weeks; working with a diabetes educator and the nursing staff, learning how to inject and care for myself. At the end of the two weeks, I pretty much had it down. I think having to choose to either master my insulin therapy or leave boarding school, motivated me to accept the diagnosis and move forward,” Holly clarifies.

The young girl got through grade 7 but once she started high school, she struggled to manage her diabetes. This is where music tapped its way into her life. “The high carbohydrate diet presented so many challenges and sport was an even bigger challenge, so I focused on music and it became my coping mechanism. I eventually had to make the tough decision to leave boarding school and go to a school closer to home. Music helped me deal with everything I was going through at the time. It became my best friend,” Holly explains.

House music

The singer started out in Afro Pop music. When she was 14, she went on tour to Cape Town and the band members introduced her to house music. “That was it! Game over! I fell madly in love with house music and the rest is history,” Holly says.

“I started working with some of the pioneers on the Durban house scene, which allowed me to grow and become an artist with a deeper understanding of the evolution of house music, from songwriting to production.”

The ambitious teenager not only recorded her second album during her matric year but released it shortly after matriculating with 8 distinctions.

Sink or swim

Did it ever cross the Durbanite’s mind that her diabetes would stop her from achieving her dream? “No,” she says, “I just found ways to get around any challenges. The music industry is tough and unforgiving; you must be prepared for everything and anything that is thrown at you. It’s just the nature of the beast. Sink or swim. In many ways, diabetes made me tougher and helped me prepare better because you can’t drive to a performance in Nongoma without plan 1,2 or 3 in place, and then a backup plan for the backup plan.”

How does the music industry view diabetes? Holly explains, “The industry is generally accepting but promoters and stakeholders generally want their pound of flesh. There is very little room for self-pity, you must suck it up and keep moving. I am 100% open about being diabetic because I don’t believe I should be apologetic. I believe that openness raises awareness, but I take care of my own needs without any fuss.”

Managing performances

Holly’s tech rider request is sugar-free drinks and bottled water. She travels everywhere with a cooler box with whatever she needs for that day. If catering is provided at events, she makes the best choices she can, depending what is on offer. She will always test her glucose before going on stage. If her sugar levels are low, she will drink a fruit juice or have a snack from her cooler box. Often, when the singer comes off stage, her glucose level is high due to the adrenalin rush and a shot of short-acting insulin is needed.

Career highlights

Performing on the 2015 Cape Town Jazz Festival main stage, when she was just 17 years old, was a ‘seriously big deal’ for her. ‘It still is the biggest moment in my career. Second to that is performing at the Umgababa New Year Picnic to a crowd of 35 000 plus. Mandoza was the headline act but he had to get to another show, so the programme director slotted him in before me. It was insane to get onto the stage after Mandoza. I really thought I was going to crash and burn but somehow, I managed to capture the crowd and maintain the buzz. It was an insane moment for me.”

Current treatment

Currently, the 21-year-old is on insulin pens (Lantus and Aphidra) but is contemplating going on to an insulin pump as when she was first diagnosed, her specialist picked up that she has dawn phenomenon and more recently this has started to play a bigger role in her control.

Regarding fitness, Holly has a personal trainer who visits her my home three times a week. She follows a Paleo-based diet, combined with elements from the Gut Diet, eating hormone-free and genetically modified organism-free organic food. Visit grassfedgirl.com for more information on eating clean.

Don’t hide your condition

Holly is a strong believer in not concealing that you have diabetes, adding “You don’t need to broadcast it but make people aware of it. It’s not only for your own benefit but important that more people become activists for Type 1s. The more we educate people about the disease, the better it is for the future generation of diabetic patients. We need to educate the public that Type 1 is very different to Type 2, and that Type 1 is not caused by bad eating habits. There is a stigma about diabetes that can only be broken down by creating more awareness.”


Follow me @hollymusicsa

    

MEET OUR EDITOR - Laurelle Williams

Laurelle Williams is the Editor at Word for Word Media. She graduated from AFDA with a Bachelor of Arts Honours degree in Live Performance. She has a love for storytelling and sharing emotions through the power of words. Her aim is to educate, encourage and most of all show there is always hope. Feel free to email Laurelle on [email protected]